Certainty in Uncertainty: Mothers Experience in Caring Children with Kawasaki Disease in Acute Phase Lia Kartika (a*), Dessie Wanda (b), Herni Susanti (b)
a) Faculty of Nursing, Universitas Pelita Harapan, Jl. Boulevard Jenderal Sudirman No. 15, Banten 15810, Indonesia *sarah.kartika[at]uph.edu
b) Faculty of Nursing, Universitas Indonesia, Jl. Prof. Dr. Bahder Djohan, Jawa Barat 16424, Indonesia
Abstract
Background: Having the experience of caring a child with a rare disease is an unexpectable and unusual moment. Kawasaki Disease (KD) is an unknown disease that can attack children under five years old. A deep thought about KD can enhance the quality of nursing care given by pediatric nurses. Many studies had explained gene and therapeutic management, but in the acute phase of KD, limited studies have conducted about the maternal experience.
Purpose: To explore the further experience of Indonesian mothers in caring for children with KD in the acute phase.
Methods: A descriptive qualitative method with a phenomenological approach was conducted. The study involved fifteen participants through convenience technique sampling. The data collection is done by in depth interviews with a semi-structured question. We analyzed the transcripts using Colaizzi s method.
Results: The study highlighted five dominant themes: certainty in uncertainty, racing against the time of treatment, go through Gods will, once is enough, gaining KD awareness.
Conclusion: Comprehensive knowledge about KD is needed to be able to provide appropriate nursing care. We were confident that paying attention to mothers and children with psychological and spiritual needs was as important as resolving the physiological matters. An additional practical nursing care guideline can improve the morbidity rate and reduce unexpected sequela.
